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C22C
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NEWSLETTERS
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A .PDF COPY OF OUR BROCHURE - SPREAD THE WORD!
Chromosome 22 Central Inc.
is a registered Canadian Non-Profit Organization
and Registered Charity BN# 86009 3665 RR0001, and a Registered US
Corporation with Non-Profit Status
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JOIN BY MAIL or
E-MAIL SUBMISSION
You may
join our group by printing and mailing our membership form (link below,
requires Adobe Reader - pdf format)
Please read
and acknowledge our Notice of Privacy Rights before submitting your
information.
You
may also register on-line by email form.
Just click here.
You may
choose to voluntarily pay the membership fees listed to receive our printed newsletter
(and pay by cheque to the CANADIAN OFFICE if mailing or Paypal if using
email submission).
CHROMOSOME
22 CENTRAL
NOTICE OF PRIVACY RIGHTS
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THIS
NOTICE DESCRIBES HOW INFORMATION ABOUT YOU MAY BE USED AND DISCLOSED.
PLEASE REVIEW IT CAREFULLY.
C22C Inc. is a voluntary organization which shares information
provided by members, with other registered members, for the purpose of
supportive networking, or if families are interested in participating
in research studies. Members of C22C include families and interested
professionals.
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Only
members who select to be added to our network database or be published
in our newsletter will have their confidential information shared
between registered members.
-
Members
who choose to have their personal information published in the
newsletter or family networking lists accept that the newsletter is
distributed through hard copy mail and a closed e-mail list through
Yahoogroups (no access to unregistered members) and understand that no
method of electronic transmission is 100% secure.
-
If members
indicate a desire to accept contact for research purposes on the
membership form, their confidential information may be
shared with professional research institutes. Members if contacted are
under no obligation to participate in any proposed studies.
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C22C Inc.
will not provide confidential information to requests made by outside
parties without the direct signed consent of the individual, or in
most cases, the consent of BOTH parents of the individual.
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Registered
members have the right to change their personal information at any
time by contacting the head office of C22C Inc. 237 Kent Avenue,
Timmins, Ontario, P4N 3C2 or by emailing steph.stpierre@gmail.com
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C22C Inc.
does NOT sell or provide confidential information for benefit or gain.
No information is exchanged about registered members except in the
above noted manner.
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Registered
members have the right to revoke their registration at anytime, and
have all confidential information on them destroyed in an acceptable
manner.
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C22C Inc.
has the right to revise the terms of this policy and members have the
right to be notified in the event of any such change.
I
have read, understand and accept the above noted terms:
link for printed Membership Form
I
do not accept the above terms, please return to homepage
Effective
date: July 9, 2003
Membership
fees are VOLUNTARY, but help us keep operating!
US/CANADIAN
FAMILIES: 1 year/$15, 2 years/$27, 3 years/$35
PROFESSIONALS
and INTERNATIONAL FAMILIES: 1 year/$18, 2 years/$34, 3 years/$45
By
submitting this form you agree that the information you have provided is
true to the best of your knowledge and you are agreeing to share this
information with other members as indicated above.
Further
donations are gratefully accepted.
Please feel free to submit a narrative and/or photo of your child
to be featured in a future newsletter.
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HEAD OFFICE - for ALL inquiries:
Chromosome 22 Central, c/o Stephanie St-Pierre, 237 Kent Avenue, Timmins,
Ontario, Canada P4N 3C2 tel/fax: (705) 268-3099, EMAIL: steph.stpierre@gmail.com
US Head Office - for US donations: Chromosome 22 Central, c/o Murney
Rinholm, 7108 Partinwood Drive, Fuquay-Varina, North Carolina, 27526
USA, tel (919) 567-8167, EMAIL: bgr@nc.rr.com
Latin America / Spanish inquiries -
Laura Munoz, Robinson Crusoe 1209, Las
Condes - Santiago, Chile tel: 02-3251262 EMAIL: lauramuno@hotmail.com
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