Lea, 22q13 Duplication
Brianna
22q11 Deletion Syndrome
Books
Published April 2007
Velo-Cardio-Facial Syndrome, Volume I (Genetic Syndromes and Communication Disorders) [Paperback]
Robert J. Shprintzen (Author), Karen J. Golding-Kushner (Author)Velo-Cardio-Facial Syndrome Volume 2: Treatment of Communication Disorders (Genetic Syndromes and Communication Disorders)
Karen J. Golding-Kushner (Author), Robert J. Shprintzen (Author)Velo-cardio-facial Syndrome: A Model for Understanding Microdeletion Disorders Editor: Kieran Murphy and Peter Scrambler- published June 2005.
Stephanie's Story - by Kathleen Wermuth
Raising a
child with multiple disabilities is an overwhelming ordeal, let
alone the physical and emotional strain that comes with it.
Stephanie's Story is the personal narrative of one parent's
emotional journey in caring and loving for her daughter, born
with a rare genetic birth defect-22Q13 Deletion Syndrome-which
has left her unable to walk or speak, and medically fragile.
Beyond the heartaches, the hardships, and the handicap, they
realize that they are truly blessed by a very special child.
ISBN: 1-4137-2715-8
A Different Life: Growing Up Learning Disabled and Other Adventures - Quinn Bradlee, re VCFS
E
manuel Syndrome: A Parent Guide - Email C22C for a free copy
VCFS - Footprints of Hope, by Raymond Tanner of Australia.
Raymond, who has VCFS, presents a
collection of stories from families around the world, as well as
tells his own touching story, and includes helpful information.