CHROMOSOME 22 CENTRAL 
SUPPORT FOR ALL CHROMOSOME 22 RELATED DISORDERS 

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C22C is a parent driven group with more than 1000 members in 45+ countries. 

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• Trisomy 22 and Rare C22 Disorders

• Cat Eye Syndrome 

• 22q Deletions

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LEARN ABOUT

• Chromosome 22 Central

• 22q11 Deletion Syndrome (DiGeorge Syndrome, Velocardiofacial Syndrome)

• Microduplication 22q11 Syndrome

• The 11/22 Translocation (Emanuel Syndrome, partial trisomy 11/22)

• 22q13 Deletion Syndrome (Phelan-McDermid Syndrome)

• Cat Eye Syndrome

• Complete or Full Trisomy 22

• Mosaic Trisomy 22

• Chromosome 22 Ring

• Monosomy 22 Mosaicism 

• Unique Chromosome 22 Disorders

• Books

 DOWNLOAD A .PDF COPY OF OUR BROCHURE - SPREAD THE WORD!

Chromosome 22 Central Inc. is a registered Canadian Non-Profit Organization 
and Registered Charity BN# 86009 3665 RR0001, and a Registered US Corporation with Non-Profit Status

BOOKS

Stephanie's Story - by Kathleen Wermuth

Raising a child with multiple disabilities is an overwhelming ordeal, let alone the physical and emotional strain that comes with it. Stephanie's Story is the personal narrative of one parent's emotional journey in caring and loving for her daughter, born with a rare genetic birth defect-22Q13 Deletion Syndrome-which has left her unable to walk or speak, and medically fragile. Everyday life in itself is not typical. The story shows what they endure, and what most people can't even comprehend is the multitude of medications, doctors, therapies and the specialized equipment, all to make life for their daughter as "typical" as possible. A love knows no handicaps, for its unconditional. For a mother and a father, they only know that a child who requires so much has given them so much more in return. Beyond the heartaches, the hardships, and the handicap, they realize that they are truly blessed by a very special child. ISBN: 1-4137-2715-8 (this is the books serial number) it is selling for $16.95 and can be ordered from Publish America (www.publishamerica.com) Barnes & Noble (www.barnesandnoble.com) as well as on Amazon.com. If anyone wishes to have a signed copy they can order the book directly from the author, although shipment may take a little longer. The price is still $16.95 plus $3.00 s&h. website: http://eponaponiesart.faithweb.com

Faces of Sunshine is a terrific handbook for parents available from the 22q and You Center at the Children's Hospital of Philadelphia 

VCFS - Footprints of Hope, by Raymond Tanner of Australia. 
Raymond, who has VCFS, presents a collection of stories from families around the world, as well as tells his own touching story, and includes helpful information. A complete description of the book, and order information can be found by searching "VCFS" at www.bookworm.com.au . 
Proceeds of the book will go towards the VCFSEF Inc. and to the VCFS Foundation Queensland for a new clinic to be opened in 2006. 

MISSING GENETIC PIECES: Strategies for Living with VCFS, The Chromosome 22q11 Deletion", was written by Ms. Sherry Gomez of Arizona. Check out the VCFSEF website for details to order.

  US Head Office - for US donations: Chromosome 22 Central, c/o Murney Rinholm, 7108 Partinwood Drive, Fuquay-Varina, North Carolina, 27526  USA, tel (919) 567-8167, EMAIL: bgr@nc.rr.com

  Latin America / Spanish inquiries - Laura Munoz, Robinson Crusoe 1209, Las Condes - Santiago, Chile tel: 02-3251262 EMAIL: lauramuno@hotmail.com