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Contact A
Family in Your Area for Peer Support - These are families, not medical
professionals, and they cannot offer medical advice.
We still
need reps in missing states and countries,
contact Stephanie if you're interested in helping us out!
The
notations beside each reps name indicates the disorder
they are most familiar with.
CANADA - PRESIDENT, Stephanie
St-Pierre
338 Spruce Street North, Timmins, Ontario, P4N 6N5 (705) 268-3099
Canadian
Representatives:
Penny Crowley,
Box 182, Bloomfield, ON K0K 1G0
tel: (613) 393-2959 (22q11del)
Michelle Shaw,
56-61 Francis Creek Blvd, St. Catharines, ON L2W 1B8
tel: (905) 680-5139 (22q11del)
Doug & Jeannie
Neufeld, 6779 Smith Blvd., RR#1,
Pefferlaw, ON L0E 1N0 tel: 905-722-6910 (22q11del)
Joann
Pettipas, 72 Brixham Road, London, Ontario, N6K 1P6,
tel:(519) 474-3921 (22q11del)
Robyn Coates,
62 Elizabeth Street South, Brampton, ON L6Y 1R1
tel:(647) 222-8888 (22q11del)
Linda Urlacher, Alberta,
Canada (11/22 translocation- Emanuel Syndrome)
Dawn Therres,
#28 - 46906 Russell Road, Chilliwack, BC V2R 5T3,
tel: 604-824-1660 (22q11del)
Mary Jane Santori, 14 Carmichael
Cres. Collingwood, ON L9Y 4R6,
tel: 705-446-3447 (22q11 del)
Kelly DiTomasso, 4369 Arejay
Ave, Beamsville, ON L0R 1B6
tel: 905-563-1679 (PT22q13)
Patti Snow, 1045 Fall River
Road, Nova Scotia, B2T 1E9,
tel: 902-860-0732 (22q11 del)
Nicole Doucette, 645 Dalhousie
Drive, Thunder Bay, ON P7C 5P4 (22q11 del)
Lydia Woronchak, 1346
Ave.Clemenceau, Verdun, PQ (514) 767-7654 (22q11 del)
C22C USA - PRESIDENT, Murney
Rinholm (11/22-Emanuel Syndrome) 7108 Partinwood Dr.,
Fuquay-Varina, NC 27526
tel (919) 567-8167
USA
REPRESENTATIVES
CALIFORNIA
Joann
Anderson (22q13 del), 22312 Modina, Laguna Hills, CA 92653
tel: (949) 581-2829
Dave
and Tina Kegle (11/22-Emanuel Syndrome), 1813 Myrtlewood Drive,
Ceras, CA 95307 tel: (209) 531-9892
Denise
Keller, (Ring 22 - Mosaic) , 5 Evergreen Lane, Cloverdale, CA 95425.
FLORIDA
Rich
Lomas (22q13 del), 830 Golf Drive, Venice, FL 34285
tel:(941) 412-9620
Barb
Southwick (22q1 deletion) 780 Grand Rapids Blvd., Naples, FL
34120 tel:(239) 304-4491
Maria
L. Kneipple, 2920 SW 80th Ave., Miami, FL, 33155
tel: (305) 519-4059, email: miami22q@gmail.com
GEORGIA
Nikki
Johnson-Duffell (22q11 del) 965 Sandy Cross Road.
Carlton, GA 30627 tel: 706-207-0525
KENTUCKY
Priscilla
Dotson (22q13 del) 1040 West Virginia Avenue
Florence, KY 41042 tel:(859) 746-1523
MASSACHUSETTS
Sarah
Patch (DGS 22q11-) Massachusetts
Lisa
Clewes (11/22-Emanuel Syndrome)
40 Woodcrest Rd., Springfield, MA 01129 tel:(413) 782-7724
MICHIGAN
Annette
Foreman (11/22- Emanuel Syndrome)
7576 Fenner Rd. Laingsburg, MI 48848 tel: 517-651-7109
Lisa
Reinhardt , Michigan
MINNESOTA
Pamela
Wendt (Cat eye syndrome)
MISSISSIPPI
Patty
Benoit (11/22 - Emanuel Syndrome)
2600 Demaret Drive, Gulfport, Mississippi 39507
NEW HAMPSHIRE
Cheryl
Paquette, 658 Bedford Rd., New Boston, NH 03070
tel: (603) 487-3779
Maureen
Anderson (VCFS) Northeast VCFS Support Group
2 Lansing Drive, Salem, NH 03079 tel:
(603)898-6332
NEW JERSEY
Dorothea
Specht (22q11 Del/VCFS)
412 Fourth Avenue, Haddon Heights, NJ 08035 tel: 856-546-3720
Kathryn
Vaccaro (CES)
710 Livingston Rd. Elizabeth, NJ 07208
NEW MEXICO
Randy
Riddle (22q13 del)
5214 Vista Bonita NE, Albuquerque, NM 87111 tel:(505)
323-9574
Kathy
Weed (VCFS)
9629 Allande Rd., NE Albuquerque, NM 87109 tel:(505) 822-1871
NEW YORK
Anne
Marie Fritton (11/22 - Emanuel Syndrome)
46 Babbette Drive, Depew, NY 14043 (716) 683-6490
Tracy
Overdurf (11/22)
10881 Canton Crest Circle, Corning, NY 14830 tel:(607) 524-6837
NORTH CAROLINA
Murney Rinholm - see address above - US PRESIDENT
OHIO
Cern Basher and Cindy Dulaney
(22q13 Del)
7858 Wild Orchid Lane, Cincinnati, OH 45242
Work tel - daytime: (513)-745-3535 Home tel: 792-0445
Janet
Hamilton (Ring 22)
11202 Wilson Avenue, Vickery, Ohio 43463 tel: 419-684-7540
Mari
Howard (Mosaic Trisomy 22)
2092 West 98th Street. Cleveland, OH 44102 tel:(216) 961-7719
Lisa
Jordan (11/22-Emanuel Syndrome)
7978 Route 40, New Paris, OH 45347 tel: (937) 437 - 2505
OKLAHOMA
Debbie
Chavez (Ring 22)
1704 S Town & Country Dr. Sand Springs, OK 74063 tel: 918-241-0606
OREGON
Ross
Retter (Ring 22)
3218 Puerto Rico Road, West Sacramento, CA 95691
tel:(916) 374-1888 Fax: (916) 374-1826
Jem
Wilson (11/22 - Emanuel Syndrome)
1345 NW Almira Roseburg, OR 97470 tel: 541-672-9536
PENNSYLVANIA
Carl
Hancock (11/22 - Emanuel Syndrome)
620 Dellville Road, Duncannon, PA tel: (717)-834-3348
RHODE ISLAND
Sue
Ball (Ring 22)
SOUTH CAROLINA
Dianna
Tornow (11/22-Emanuel Syndrome)
1004 Magnolia Street, Aiken, SC 29803 tel: (803) 652-3295
TENNESSEE
Mechille
Burke (PT22q12.1) 506 Forrest Avenue
New Tazewell, Tennessee 37825 tel:(423) 626-8669
TEXAS
Jennifer
Saenz (22q11 Del/VCFS/DGS)
2123 Dover Drive, Carrollton, TX 75006 tel: 972 242 3040
Ann
Brown (11/22-Emanuel Syndrome)
5311 Dixie Cir., Sachse, TX 75048 tel:(972) 495-3218
VIRGINIA
Jessica
Archer (Ring 22)
133 Overlook Drive, Madison Heights, Virginia 24572 tel: (434)
845-6337
Michelle
Williamson (VCFS)
4507 Boones Trail Terrace, Chesterfield, VA, 23832 tel: (804)
276-9130
WASHINGTON
Marla
Barstad (XY:22 Trans)
10210 Estes Rd., Yakima, WA 98908, tel:(509)965-9895
Ross
Retter (Ring 22)
15926-26th Dr. SE, Millcreek, WA 98012
WISCONSIN
Lenore
Frohmader (Cat eye syndrome)
2804 Killdeer Ct., West Bend, WI 53095
Meredith
Miske (11/22-Emanuel Syndrome)
631 Bishop Street, Plymouth, WI 53073 tel: (920)
892-4077
SOUTH AMERICA - Laura Munoz +
(11/22-Emanuel Syndrome)
Robinson Crusoe 1209, Las Condes - Santiago, Chile tel: 02-3251262
SCOTLAND - May Mayberry
(Mosaic Trisomy 22)
4 Griers Walk, Drybridge, Irvine, Ayrshire, SCOTLAND KA11 5BL tel: +44
(0) 1294 273460
IRELAND
- Anne Lawlor (22q11
deletion), 6 Marino Green, Marino, Dublin 3, Ireland.
ENGLAND -
Julia
Parker (11/22-Emanuel Syndrome)
9 Paddock Way, Laverstock, Salisbury, Wilts, ENGLAND SP1 1SJ tel: +44 (0)
1722 330391
FRANCE - Isabelle
Marchetti-Waternaux
President - VALENTIN A.P.A.C.
Association de Porteurs d'Anomalies Chromosomiques
52, La Butte Eglantine - 95610 ERAGNY SUR OISE
Tél/Fax : 01 30 37 90 97
AUSTRALIA - Raymond
Tanner (VCFS)
45 Southbound Ave., Aberfoyle Park, South Australia, AUSTRALIA, 5159 tel:
61-8-8270-2890
Velo Cardio Facial Syndrome Foundation of NSW,
Melinda Woods, President
NEW ZEALAND - Melissa Richardson (VCFS)
58 Drake Street, Howick, Auckland, New Zealand steven.mel@xtra.co.nz
tel: 0064 9 5341903
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