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Chromosome 22 Central Inc.
is a registered Canadian Non-Profit Organization
and Registered Charity BN# 86009 3665 RR0001, and a Registered US
Corporation with Non-Profit Status
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THE DON'T STOP BELIEVIN'
BENEFIT
Presented by Team Dylan
Click
here for more photos and a write up on CharityHappenings.org
Video
from New York 1 News about little Dylan with Emanuel Syndrome
New
York 1 News coverage of Don't Stop Believin' Benefit
A HUGE THANK YOU TO NEW
YORK1 NEWS FOR BEING A SPONSOR OF THE EVENT! Thank you to all of our
sponsors!
A HUGE thank you to the
sponsors of this event!
First of all, I would just like to say how overwhelmed I am, that people I have never met will extend themselves to such degrees to support a cause so dear to my heart.
When my daughter Maia was born 13 years ago, I was filled with despair. What she had was so rare, I was told there were no other cases in Canada, and it would be unlikely that she would live long.
Her birth started me on a journey that would lead me into a whole new world of amazing people.
The proceeds from this benefit will go towards bringing together other families like mine, like Dylan's family, – who started out the same way as I did, not knowing. In our beginnings, it brought a family from southern Ontario on a 9 hour journey north, to meet my family. It brought a woman and her daughter, from Salisbury, England, to Timmins, where I live. It has brought families from Chile, the UK and Australia, and all over North America, to our past gatherings. When you are told that your child's diagnosis is so rare that there are few others, you will go to the ends of the earth to meet another family.
While I am from Northern Ontario, the diagnosis our children have make it impossible to find someone close to meet. When I started our group, we had 17 families scattered in all areas of the world. Today, we have had close to 2000 people connect with C22C, with children all affected with different chromosome 22 disorders,
some unique in all the world.
Our conferences allow a chance for parents to share invaluable information. Because of the rarity of same of the disorders we represent, we learn more from each
other than from any available literature or doctor. Being able to defray the costs of these conferences, to bring families from so far apart
together - to give that sense of comfort and acceptance - is an amazing gift.
Our group's mission has always been to be able to provide that sense of immediate comfort to new families, and we have worked hard to bring awareness to our conditions and push forward to make information current and easily found.
I want to thank each and every one of the people who supported the Don't
Stop Believin' Benefit by donation, or who attended or sponsored the
event, for putting your faith into a cause that you probably had never heard of. While I may have started C22C, it has taken on a life of its own, simply because of the need for it to exist.
We are so incredibly grateful for your support.
Thank you to American Airlines and
JetBlue for flying Murney, Atle and I to New York - so that we could take
part in this amazing effort to support our drive to bring families
together.
Thank you to Dylan – for defying the odds given to him, and for bringing his parents, Melissa and Oleg, into that circle of friends I cherish so
much, for Melissa and Oleg for being the worlds greatest hosts and tour
guides and being the reason for Team Dylan to pull together for C22C.
To Jessica Abo, for the tremendous effort she has put forth, along with the phenomenal people she has organized into Team Dylan and for being such an amazing person so willing to give to others.
Thank you from the bottom of my heart!
While Maia's diagnosis and challenges are difficult some days, it is my daughter that has given me a sense of purpose and direction in life, and for that, I will always be grateful to her.
The Don't Stop Believin' Benefit has meant the world to me, and it will keep
me as motivated to continue what I started, and keep "Believin'!". Thank
you!!
Stephanie St-Pierre, Founder C22C
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HEAD OFFICE - for ALL inquiries:
Chromosome 22 Central, c/o Stephanie St-Pierre, 338 Spruce Street North,
Timmins, Ontario, Canada P4N 6N5 tel: (705) 268-3099, EMAIL: steph.stpierre@gmail.com
US Head Office - for US donations: Chromosome 22 Central, c/o Murney
Rinholm, 7108 Partinwood Drive, Fuquay-Varina, North Carolina, 27526
USA, tel (919) 567-8167, EMAIL: bgr@nc.rr.com
Latin America / Spanish inquiries -
Laura Munoz, Robinson Crusoe 1209, Las
Condes - Santiago, Chile tel: 02-3251262 EMAIL: lauramuno@hotmail.com
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